Resources

• PKU News

• The World of PKU

• Screening Journal

• Baby’s First Test

• Centers for Disease Control and Prevention

• Newborn Screening: Public Health Stories (CDC)

• National PKU Alliance

• Journal Sentinel “Deadly Delays” newspaper series

• The March of Dimes

• University Archives, State University of New York at Buffalo

• National Newborn Screening and Global Resource Center (NNSGRC)

• “NewSTEPs” Newborn Screening Technical assistance and Evaluation Program

• The Museum of disAbility History, a project of PEOPLE, Inc.

• Welcome to E.S.PKU

 

Books

• Robert Guthrie: The PKU Story: A Crusade Against Mental Retardation

  • by Jean Holt Koch (Hope Publishing House, 1997)

• The PKU Paradox: A Short History of a Genetic Disease

  • by Diane B. Paul and Jeffrey P. Brosco

  • (Johns Hopkins University Press, 2013)

• Newborn Screening: How One Simple Test Changed Lives, Science and Health in America

  • Association of Public Health Laboratories, May 2013

 

Special Thanks

• ESPKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria).

• Robert Guthrie Memorial Dinner

• Dr. Harvey Levy

• Dr. Brad Therrell

• William Offhaus, Special Collections Assistant, University Archives, State University of New York at Buffalo

• Sarah Chamberlin Executive Director, National PKU News, pkunews.org, Co-founder, howmuchphe