Posts Tagged: Global Association for PKU

2018 NPKUA meeting reveals heroes and challenges

At the 2018 National PKU Alliance conference in Atlanta July 5-9, I’m meeting many? people from the world over all striving to improve the lives of those affected by phenylketonuria — the disorder they know so well but is barely recognized outside the PKU circle of patients, families,?clinicians, researchers and advocacy groups. NPKUA nominated my father, Dr. Robert Guthrie, for a Pioneer Award and Executive Director Christine Brown asked a family member to accept the award at the conference’s Saturday night banquet..

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