Rare Krabbe Disease Focus of Emory Conference by Patricia Guthrie | Sep 20, 2017 | For Our Children's ChildrenHeartbreak of Krabbe disease: A mother’s story “My son’s life had some kind of meaning. But when I looked up, I just saw this black hole. Anne Rugari She buried her year-old son that day, sat on her front porch that night and stared at the sky....