Posts Tagged: Doomed by Delay

“Doomed by Delay:” Newborn screening ‘mandate’ fails

Newborn Screening in the News An excellent special report by the?Chicago Tribune was recently published?online. It details how five babies in Illinois born with Krabbe disease suffered from being undiagnosed and untreated despite the state mandating in 2007 that the genetic disease be added to its newborn screening panel. ?Slow-moving bureaucracy and a “byzantine procurement process” are blamed; Gov. Bruce Rauner appears ready to intervene. The article quotes Dr. David Jinks, former chief of the Illinois Newborn Screening Lab, who was also.

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