Heartbreak of Krabbe disease: A mother’s story “My son?s life had some kind of meaning.? But when I looked up, I just saw this black hole.? Anne Rugari She buried her year-old son that day, sat on her front porch that night and stared at the sky.? ?Looking up at the stars, I thought, ?I know that I am not the only person this has ever happened to. I know there must be other families out there.? But the doctor had said.